LDSG as an informal group led by volunteers for the purpose of eliminating the isolation felt by those affected, helping its members to learn to cope, empowering members with support and information, and assisting family and friends of patients. LDSG interacts with both federal and state agencies, medical schools and health care communities, in addition to participating in public policy and legislative efforts, insurance and government assistance issues.
LDSG is an informal group led by volunteers – ordinary people with extraordinary commitment lead the group. THEY DO NOT SUBSITUTE FOR PROFESSIONAL HELP.
LDSG collects and disseminates information about the prevention, diagnosis and treatment of Lyme Disease, serves as a resource and rescue center, provides a network of support for Lyme patients and their families, and carries the message of recovery to those who still suffer.
LDSG provides a forum for Physicians and health professionals for the exchange of ideas and information about symptoms, diagnosis, and treatment of Lyme Disease.
LDSG acts as a communications and information center and encourages the research of individuals and groups who are working to help patients of Lyme Disease.
LDSG members are those people negatively affected by Lyme (or other tick-borne disorders) with a desire to help themselves, loved ones of patients (family and friends) providing support, and interested third parties that share information and assistance in an effort to aid in recovery.
LDSG assists in the creation, monitoring, and participation as much as feasible in any legislations, insurance and health practices, and/or other elements that are affecting members.
LDSG uses the shared leadership concept – meaning that members share the responsibility for guiding the group. At least one support meeting per month will be held in Oklahoma City, and provide additional meetings as events present themselves, and have speakers present at these meetings when available.
LDSG is self-supporting – operating on member donations covering the costs of copying, facility expenses, and operating costs as applicable; additional purchases are approved by 2/3’s of the membership; corporate sponsorships/donations will be sought for special needs. All monies are handled by at least two members and records initialed.
LDSG recognizes each member’s privacy and confidentiality. Members attending meetings are assured confidentiality by other members and may participate Anonymously. Any documents including members’ contact information are held in confidence and are not to be shared with any other party except as applicable with member’s knowledge to accomplish the intended projects and/or activities.
LDSG members are responsible for their own decisions.
LDSG members who are “recovered” will consider donating their time to help the Lyme Disease cause. This includes assisting the LDSG, being a mentor to someone who needs extra support, facilitating a meeting, and/or volunteering to conduct community education.
LDSG’s mission is accomplished when its members experience psychological recovery and can cope with life’s ups and downs.