Lyme Disease Support Group (LDSG) of Oklahoma is an informal group led by volunteers for the purpose of providing education, public awareness, and advocating for those suffering from Lyme Disease/STARI and other tick-borne bacterial infections. Our mission is to eliminate the isolation felt by those affected, empower members through information and support, exchange experiences and coping skills, and assist family and friends of patients. LDSG interacts with federal and state agencies, medical schools, health care communities, research centers and educational venues, national organizations and foundations; and participates in public policy and legislative efforts, insurance and government assistance issues.
Meetings are normally held in either Oklahoma City or Tulsa. Admission is free and open to the public. For more information on LDSG or are in need of help, please feel free to contact us for assistance... visit ABOUT US.
Next Meeting: Saturday, Sept. 15, 2007
Held in Tulsa at OSU Med School between 10:30am-12:00pm. The meeting is free and open to the public, and will include updates on current events and active projects. This session will also allow the new members that have joined this summer an opportunity to meet and exchange information with existing members. download: Meeting Sign/Flyer
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Oklahoma’s Lyme Disease Support Group largest in U.S.
The Lyme Disease Support Group (LDSG) of Oklahoma was formed in February 2005 with just six members that initially meet while being treated by the same Lyme specialist. By the first public meeting a month later there were 14 in attendance. As of June 2007, membership grew to just under 200 individuals battling Lyme/Stari and LDSG quickly became the largest support group in the county. On average LDSG adds seven new members each month.
What makes this accomplishment so remarkable is that LDSG is an all volunteer organization, relied solely on word-of-mouth and grassroots efforts to make its presence known... all while the Department of Health (DOH) had been promoting to the public and medical community that Lyme Disease didn’t exist in Oklahoma. (DOH had not reported a single case of Lyme Disease to the CDC since year 2000.)
Although ‘Lyme’ is prominent in the name, LDSG has expanded to include those suffering from STARI (Masters Disease), Babeiosis, Bartonella, Ehrlichiosis, RMSF, and other tick-borne illnesses (TBI). Several of the LDSG members have contracted at least one of these TBIs as co-infections in addition to their Lyme. Approximately 80% of LDSG members have developed more advanced and complex cases of Lyme Disease including Neuro-Borreliosis (affecting the brain and central nervous system) due to the prolong period they went undiagnosed and/or didn’t receive appropriate treatment.